About Vasculitis UK

Setting up a Vasculitis Support Group

group meetingThere are Vasculitis Support Groups in a number of regions in the UK. Please see the Support Group page. If there isn't a group in your area you might like to consider starting one. You don't have to start big with a venue and speaker, it could be a small gathering at home or in a local pub. This is an excellent way to meet and support other vasculitis patients, and starting small is much less stressful for the organisers.

All the Support Groups mentioned in the Support Group list are autonomous in that they are not "administered" by the Trust. However, it is one of the aims of the Trust to help and support the Support Groups.

We, at Vasculitis UK, do our best to ensure that support group meetings are well attended by advertising them in the "Dear Diary" section in the Newsletter, the e-News, on our Facebook and Health Unlocked discussion groups, and here on our website.

For new groups the Trust will advertise your endeavours by checking our main database for all members in your area and writing to them with details of the meeting. We can supply you with posters for your local hospitals/GP clinics etc, and send loads of "goodies" - balloons, pens, stick-it notes, car stickers etc. We also have a leaflet available to give you ideas about how to set up a Group.

We do not believe that anyone setting up a group should be out-of-pocket if they are willing to organise and run support group meetings. The Trust can offer some financial assistance towards funding at least the initial meeting.

Why not check the Support Groups. If there isn't a group in your area then email John Mills to discuss setting up a group.

eurordis logo


Vasculitis Renal and Respiratory Training Day - Hammersmith Hospital

30 Jul 2019

RUDY Study

29 Oct 2015

A study in rare diseases of the bones, joints and blood vessels.

Cortisone (Steroid) Information Website

13 Jan 2014

A new indepth website publishing information about steroids for patients

Copyright © 2018 Vasculitis UK. All Rights Reserved. Whilst we make every effort to keep up to date, any information that is provided by Vasculitis UK should not be a substitute for professional medical advice. Always seek the opinion of your GP or other qualified medical professional before starting any new treatment, or making changes to existing treatment.
Design & Hosting by On Screen