Vasculitis UK Events
ANCA Patient Focus Group on Clinical Trials27 Feb 2019
To all ANCA Vasculitis Patients
Come and meet us at 2.00pm to 3.30 pm on Wednesday 27th February 2019.
The meeting will be in Tutorial Room 11 (Ground floor) of the Royal Free Hospital, Rowland Hill Street, London NW3 2PF
Refreshments will be provided.
We want to hear your opinions on some proposed clinical trials that are being worked up at the moment.
We want to know:
- o What are your priorities for clinical trials in ANCA vasculitis?
- o What do you think about current proposals we will present?
- o What are the barriers to enrolling in such trials from your perspectives?
- o What sort of patient related outcomes are important to you? How do these match up with what the trials are proposing?
We will specifically discuss proposed trials on steroid avoidance, withdrawal of immunotherapy after remission and management of fatigue.
Look forward to seeing you there