Vasculitis UK Events

ANCA Patient Focus Group on Clinical Trials

27 Feb 2019

To all ANCA Vasculitis Patients

Come and meet us at 2.00pm to 3.30 pm on Wednesday 27th February 2019.

The meeting will be in Tutorial Room 11 (Ground floor) of the Royal Free Hospital, Rowland Hill Street, London NW3 2PF

Refreshments will be provided.

We want to hear your opinions on some proposed clinical trials that are being worked up at the moment.

We want to know:

  • o What are your priorities for clinical trials in ANCA vasculitis?
  • o What do you think about current proposals we will present?
  • o What are the barriers to enrolling in such trials from your perspectives?
  • o What sort of patient related outcomes are important to you? How do these match up with what the trials are proposing?

We will specifically discuss proposed trials on steroid avoidance, withdrawal of immunotherapy after remission and management of fatigue.

For further information and to sign up (so that we have an idea of numbers) see this link Or email Professor Alan Salama - a.salama@ucl.ac.uk

Look forward to seeing you there

Alan Salama, Lorraine Harper

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