Vasculitis UK Events

Tough Mudder 2017

21 May 2017

Charlette East is taking part in the Tough Mudder at Belvoir Castle Near Grantham on 21st May 2017 - to raise awareness for Vasculitis UK, because her mother had a very close call before diagnosis.

Charlette says: “About 6 years ago my mum was told by doctors she was taking her illness too seriously and that there was nothing wrong.....then she was taken to Leicester hospital on deaths door due to the amount of poison in her blood! We were then told she had Wegeners granulomatosis, a form of vasculitis. To see my mother hooked up to a machine that had to clean her blood for her to stop her dying was a very upsetting time. There are so few people who know about this so I'm raising money to help however I can.”

Charlette is taking part with a team of friends: Jodie Fletcher, Tommy Atkin and Shane Nicholls. To donate please see her Just Giving page

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Rare Disease Day 2018

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February 28th is Rare Disease Day 2018

Events

South Wales Support Group

03 Feb 2018

Sat 3rd Feb in Porthcawl

North West Support Group Meeting

17 Mar 2018

Joing the Northwest Support Group for a coffee

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