Vasculitis UK Events

Kyri's Haircut

21 Apr 2017

My name is Kyri and I’m 30 years old.

I’ve been very ill since being 18months old with Arthritis, and then in 2010 I was diagnosed with Vasculitis which I had never even heard of.

Since then I’ve been diagnosed with many other illnesses but the main one I suffer from is Vasculitis - so I’m always looking at new ways to help fundraise and to raise awareness to help other sufferers like myself.

Since Christmas my hair has started to fall out drastically and my doctors don’t know which of my illnesses could be causing it. With me having a thick head of hair you’ve only been able to notice lately. It’s coming out all through the day and night and I’m forever picking clumps up off furniture and clothes, so I thought about donating the hair. But because its coming out in loose strands it needs to be kept together to be used, so I’ve decided to have it cut short. So I can send the hair what’s left to a special charity that makes wigs for children who have lost their hair from cancer and other treatments.

I’m hoping to raise some money for Vasculitis UK before I have it done.

Vasculitis has really changed my life since being diagnosed and there’s not enough people know what it is or how it affects you.

Vasculitis UK have helped me through every step of the way and have given me the strength to carry on, so what better way than to help them help even more Vasculitis warriors like myself?

So please - no matter how big or small every penny makes a difference to someone else’s life. You too can make a difference just like me.

To Donate please see my JustGiving page

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News

An App to Support Vasculitis Patients and Research

21 Sep 2017

New app to help Vasculitis manage their condition

Emotions, Relationships and Sexuality

21 Sep 2017

100-page booklet available online or in print

Art Inflammation and the Illness Experience - Shanali Perera

09 Sep 2017

Shanali Perera gave a presentation at the the Spring Vasculitis Education Day in March 2017

Events

Gill's 40 Things At 40!

01 Oct 2017

40 Things in aid of VUK

Cardiff Half Marathon

01 Oct 2017

Running for Vasculitis UK

Vasculitis Support Group West Midlands

08 Oct 2017

The West Midlands Support Group are meeting on 8 October

Chester Marathon

08 Oct 2017

Michael Kingsbury is running for Vasculitis UK

Rare Disease Patient Network Meeting

18 Oct 2017

Free event in Cardiff

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