Vasculitis UK News

Vasculitis UK AGM - a reflective view in photos

17 Jun 2017

The AGM was held on the 14th May in Derby and was well attended by 70 people.

Dr Jackie Andrews from Leeds Teaching Hospitals NHS Trust gave a presentation discussing ERNs (European Reference Networks), Vasculitis Research at Leeds University Hospital and the AVACOPAN trial.

Dr Jeremy Royle, Nottingham QE, discussed his recent trip to the Annual International Vasculitis Conference in Japan and his latest research study "Oral Cyclophosphamide v IV Cyclophosphamide".

Dr Peter Lanyon, Nottingham QE, President British Society for Rheumatology Society, discussed the new Rare Autoimmune Rheumatic Disease Alliance ( BSR, SRUK, Lupus UK & VUK ) and Raising Standards of Care in Vasculitis.

Dr Fiona Pearce, Derby Hospitals, discussed her latest research into "Delays in Diagnosis of ANCA Vasculitis". ( Conclusion was that delayed diagnosis did not occur mainly in primary care but in the secondary, hospital setting ) Fiona has now been given substantial funding by ARUK to follow up this important research which was initially funded by VUK.

John, Jackie and Fiona Battling the IT

John, Jackie and Fiona Battling the IT

Face Book friends finally meet

Face Book friends finally meet!

Dr Peter Lanyon

Dr Peter Lanyon

Dr Jackie Andrews

Dr Jackie Andrews

Dr Jeremy Royle

Dr Jeremy Royle

Dr Fiona Pearce

Dr Fiona Pearce

Vasculitis UK Chairman, John Mills

Vasculitis UK Chairman, John Mills

AGM in progress AGM in progress

The AGM in progress

Networking between sessions Networking between sessions

Networking between sessions

eurordis logo

News

An App to Support Vasculitis Patients and Research

21 Sep 2017

New app to help Vasculitis manage their condition

Emotions, Relationships and Sexuality

21 Sep 2017

100-page booklet available online or in print

Art Inflammation and the Illness Experience - Shanali Perera

09 Sep 2017

Shanali Perera gave a presentation at the the Spring Vasculitis Education Day in March 2017

Events

Gill's 40 Things At 40!

01 Oct 2017

40 Things in aid of VUK

Cardiff Half Marathon

01 Oct 2017

Running for Vasculitis UK

Vasculitis Support Group West Midlands

08 Oct 2017

The West Midlands Support Group are meeting on 8 October

Chester Marathon

08 Oct 2017

Michael Kingsbury is running for Vasculitis UK

Rare Disease Patient Network Meeting

18 Oct 2017

Free event in Cardiff

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