Vasculitis UK News

Raise Awareness of Vasculitis for Rare Disease Day February 28th 2019

28 Feb 2019

The theme for Rare Disease Day 2019 is 'Bridging health and social care'.

“For most people living with a rare disease, as well as their family members or carers, the reality of daily life can include any combination of the following: collecting and taking medicines, attending appointments, participating in physical therapy, using specialist equipment and accessing various social and community support services and respite care. Managing these care-related tasks alongside their usual daily activities such as work, school and leisure time can be challenging.”

To raise awareness of vasculitis and the realities of living with Vasculitis on Rare Disease Day :-

Organise a coffee morning or afternoon tea with family and friends

Organise a disco or social event and have some fun to both raise awareness and fundraise, with family and friends

For vasculitis promotional items, information booklets and leaflets please contact Susan Mills ( - or Kelly Jefferies (

To organise a fundraising event please contact Dorothy VUK’s fundraising coordinator

For further information about Rare Disease Day please follow this link

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Copyright © 2018 Vasculitis UK. All Rights Reserved. Whilst we make every effort to keep up to date, any information that is provided by Vasculitis UK should not be a substitute for professional medical advice. Always seek the opinion of your GP or other qualified medical professional before starting any new treatment, or making changes to existing treatment.
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