Vasculitis UK News
RUDY study update04 Jun 2019
RUDY STUDY UPDATE Uniting Patients and Researchers to Investigate Rare Diseases
The RUDY STUDY is now at 1827 participants!
Please do tell them how you are feeling.. Here's a reminder of why RUDY exists....
**What is the purpose of the study?
They are interested in understanding more about all aspects of rare diseases. Some of this new understanding will be used to develop new tests and treatments for patients with rare diseases. A first step in doing this is to gather information in order to describe in more detail the different types of rare diseases and what it is like to live with them.
They intend to do this through questionnaires over a period of five years, and in the future, they hope to introduce some sub-studies such as a physical assessment, blood and urine and a skin biopsy (for certain rare diseases). They are recruiting as many participants to this study as possible because of the rare nature of these diseases.
For more information about the RUDY STUDY or to sign up please follow this link