Vasculitis UK News

UKIVAS Update December 2018

28 Dec 2018

As vasculitis is a rare disease, we need to link many hospitals together to assemble a group large enough to allow us to ask and answer important questions about what causes the disease, who is likely to relapse, who we can stop treatment on, and what the best treatment is. With generous support from Vasculitis UK and Kidney Research UK, the UKIVAS Registry was designed to achieve this across the British Isles.

After a slow but steady initial recruitment, the number getting involved has accelerated and as of October 2018 there were 76 Registered Sites in NHS hospitals in the UK, as well as hospitals in the Republic of Ireland) - with over 5,500 patients recruited to the study and approximately 100 cases recruited each month, making this probably the largest such registry in the world.

Thank you to the teams at all our sites for your continuing support.

Co Chairs - Richard Watts and Mark Little

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