Vasculitis for Professionals

General Information & Clinical Trials

Vasculitis Rare Disease Group

The Vasculitis Rare Disease Group has developed from the UK and Ireland Vasculitis registry initiative UKIVAS. The group members represent Vasculitis units across the UK and participate in Vasculitis research and care.

The Vasculitis RDG website is currently not complete but is available to view at: RareRenal.org - Vasculitis Rare Disease Group

Vasculitis and the Dental Team

An article written by John Mills, Chairman - Vasculitis UK - June 2016 for the British Dental Team Journal ( BDJ ): Vasculitis and the Dental Team

Approach to a patient with vasculitis

A PowerPoint presentation - "Approach to a patient with vasculitis" www.slideworld.com

Clinical Trials

This is an American website funded by the National Institutes of Health. All new clinical trials (for all diseases) should be registered with this organisation before starting and some of the results of the trials should be made available after completion. Some other non-trial research is also registered with the site. The information on the site is freely available and can be used to look for new clinical trials for a specific disease and where the clinical trials are taking place. Even though the site is American most European clinical trials will also be registered here. www.clinicaltrials.gov

European League Against Rheumatism (The) [EULAR]

The main professional organisation for European Rheumatologists' official site. The site contains links to many of their published guidelines on the management of systemic vasculitis (and many other inflammatory diseases) and on managing the side effects of drugs such as steroids and other immunosuppressants. www.eular.org

European Vasculitis Study Group (The) [EUVAS]

A collaboration of many medical professionals and researchers passionately interested in the treatment of systemic vasculitis. EUVAS has organised several major international clinical trials over the last two decades. The website is very useful containing published articles on the diagnosis, classification and management of vasculitis. The results of their clinical trials are posted to the website as are details of clinical trials underway. The website also contains links to treatment guidelines for managing systemic vasculitis. www.vasculitis.org

UKIVAS: a registry for patients with vasculitis in the UK and Ireland

A new project, the aim of which is to collect anonymised information about patients throughout the UK with different types of vasculitis, in a uniform way. Those involved in the project include the Vasculitis Rare Disease Working Group and is supported by Kidney Research UK and Vasculitis UK.

Further information is available at: Rare.Renal.Org

Diagnostic and Classification Criteria in Vasculitis Study (DCVAS)

DCVAS is a multinational observational study and aims to develop diagnostic criteria and update classification criteria in vasculitis. www.dcvas.org

Vasculitis Clinical Research Consortium (The) [VCRC]

The Vasculitis Clinical Research Consortium (VCRC) is an American based integrated group of academic medical centres, patient support organisations and clinical research resources dedicated to conducting clinical research in different forms of vasculitis. The website contains links to pages on specific diseases and their treatment. It also contains links which allow patients to register their details on disease specific contact registries. www.rarediseasesnetwork

The Renal Association: About eGFR (Glomerular Filtration Rate)

Patient information on estimated Glomerular Filtration Rate www.renal.org - About eGFR

Nose Reconstruction for Vasculitis

Prosthetics for the Nose - A Personal Story

Nose Reconstruction in the Individual with Systemic Vasculitis - a guide by The Centre for Nose Reconstruction at Poole Hospital

VINE - VASCULITIS NETWORK IN IRELAND

Vasculitis Ireland Network

eurordis logo

News

Emotions, Relationships and Sexuality

18 Jul 2018

100-page booklet available online or in print

Vasculitis UK Charity Ball

01 Jul 2018

A date for your diary

Rare Autoimmune Rheumatic Diseases Alliance

12 Apr 2018

RAIRDA Autoimmune Rheumatic Disease Alliance

Events

Llyn Peninsular Trek

23 Jul 2018

White Collar Boxing

28 Jul 2018

Tough Mudder Half Run Yorkshire

28 Jul 2018

Aimee Crossland is taking part in Tough Mudder for VUK

Total Warrior Shap Zone

04 Aug 2018

Karen is running this tough obstacle Race for VUK

West Country BBQ

19 Aug 2018

Copyright © 2018 Vasculitis UK. All Rights Reserved. Whilst we make every effort to keep up to date, any information that is provided by Vasculitis UK should not be a substitute for professional medical advice. Always seek the opinion of your GP or other qualified medical professional before starting any new treatment, or making changes to existing treatment.
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