Useful Vasculitis Links

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National and International Information

Disease specific websites

Vasculitis UK Web Discussion Groups

  • Vasculitis-UK HealthUnlocked - A discussion group for people with vasculitis and for people with an interest in vasculitis. You can set your own levels of privacy for who sees your posts. Health Unlocked
  • Facebook (Vasculitis UK): - Become a member of Facebook - Vasculitis UK. This is a closed group where only members can see your post.
  • Facebook (Vasculitis UK Young Vasculitis): - A closed group for young vasculitis patients between the ages of 16 and 30ish to chat to others in a safe environment. Facebook - Young Vasculitis
  • Facebook (Vasculitis UK Bereavement Support): - A closed and safe group for bereaved family and friends to chat to others who have been bereaved because of vasculitis. Facebook - Bereavement Support
  • Facebook (Vasculitis UK Caring for Carers): - A closed and safe group for those who are caring for a vasculitis patient. Chat and find help and support from others who care for a patient. Facebook - Caring for Carers
  • Facebook (Vasculitis UK Music for relaxation and meditation): - For music to help with relaxation, meditation or just to sit and close your eyes and rest for a while join. FAcebook - Relaxing and Meditation Music
  • Facebook (Vasculitis UK Timeline): - An open group with up-to-date information, news, photographs and much more. Facebook - Timeline

Discussion Groups - Individual Vasculitis Diseases

"Facebook" also has a number of Discussion Groups for the individual vasculitides. Go to "Facebook" and search for the disease.

Live Chat Room for CSS (EPGA)

To join please visit: Churgy Chums

Budget Travel Resources

Expertvagabond.com

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News

Rare Autoimmune Rheumatic Diseases Alliance Update

31 Aug 2018

RAIRDA Autoimmune Rheumatic Disease Alliance

Vasculitis UK Charity Ball

28 Aug 2018

A date for your diary

Vasculitis Fellowships

17 Aug 2018

Events

Workshop in Nottingham

06 Oct 2018

Lincolnshire Support Group Meeting

06 Oct 2018

Bournemouth Half Marathon

07 Oct 2018

Cardiff Half Marathon

07 Oct 2018

Running to raise awareness of vasculitis

West Midlands Vasculitis Support Meeting

07 Oct 2018

Copyright © 2018 Vasculitis UK. All Rights Reserved. Whilst we make every effort to keep up to date, any information that is provided by Vasculitis UK should not be a substitute for professional medical advice. Always seek the opinion of your GP or other qualified medical professional before starting any new treatment, or making changes to existing treatment.
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