Useful Vasculitis Links

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National and International Information

Disease specific websites

Vasculitis UK Web Discussion Groups

  • Vasculitis-UK HealthUnlocked - A discussion group for people with vasculitis and for people with an interest in vasculitis. You can set your own levels of privacy for who sees your posts. Health Unlocked
  • Facebook (Vasculitis UK): - Become a member of Facebook - Vasculitis UK. This is a closed group where only members can see your post.
  • Facebook (Vasculitis UK Young Vasculitis): - A closed group for young vasculitis patients between the ages of 16 and 30ish to chat to others in a safe environment. Facebook - Young Vasculitis
  • Facebook (Vasculitis UK Bereavement Support): - A closed and safe group for bereaved family and friends to chat to others who have been bereaved because of vasculitis. Facebook - Bereavement Support
  • Facebook (Vasculitis UK Caring for Carers): - A closed and safe group for those who are caring for a vasculitis patient. Chat and find help and support from others who care for a patient. Facebook - Caring for Carers
  • Facebook (Vasculitis UK Music for relaxation and meditation): - For music to help with relaxation, meditation or just to sit and close your eyes and rest for a while join. FAcebook - Relaxing and Meditation Music
  • Facebook (Vasculitis UK Timeline): - An open group with up-to-date information, news, photographs and much more. Facebook - Timeline

Discussion Groups - Individual Vasculitis Diseases

"Facebook" also has a number of Discussion Groups for the individual vasculitides. Go to "Facebook" and search for the disease.

Live Chat Room for CSS (EPGA)

To join please visit: Churgy Chums

Budget Travel Resources

Expertvagabond.com

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News

Important Patient Survey

19 Jul 2017

Important Patient Survey in Partnership with Lupus UK, SRUK and the British Society for Rheumatology

Prednisolone Experiences Wanted

19 Jul 2017

VUK want to know about your experience with Prednisolone

Rare Autoimmune Rheumatic Diseases Alliance

19 Jul 2017

New group formed

Events

Kathleen's Triathlon for VUK

22 Jul 2017

Kathleen MacNee's VUK Triathlon

Prudential RideLondon

28 Jul 2017

Mark Sinclair cycling for VUK

Channel Swim

31 Jul 2017

The Flitwick Dolphins are swimming for VUK

Sky Dive for VUK

01 Aug 2017

Jayne Coulson is skydiving for VUK

VUK on show in Bakewell

05 Aug 2017

Showcase for VUK at Derbyshire event

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