Useful Vasculitis Links

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National and International Information

Disease specific websites

Vasculitis UK Web Discussion Groups

  • Vasculitis-UK HealthUnlocked - A discussion group for people with vasculitis and for people with an interest in vasculitis. You can set your own levels of privacy for who sees your posts. Health Unlocked
  • Facebook (Vasculitis UK): - Become a member of Facebook - Vasculitis UK. This is a closed group where only members can see your post.
  • Facebook (Vasculitis UK Young Vasculitis): - A closed group for young vasculitis patients between the ages of 16 and 30ish to chat to others in a safe environment. Facebook - Young Vasculitis
  • Facebook (Vasculitis UK Bereavement Support): - A closed and safe group for bereaved family and friends to chat to others who have been bereaved because of vasculitis. Facebook - Bereavement Support
  • Facebook (Vasculitis UK Caring for Carers): - A closed and safe group for those who are caring for a vasculitis patient. Chat and find help and support from others who care for a patient. Facebook - Caring for Carers
  • Facebook (Vasculitis UK Music for relaxation and meditation): - For music to help with relaxation, meditation or just to sit and close your eyes and rest for a while join. FAcebook - Relaxing and Meditation Music
  • Facebook (Vasculitis UK Timeline): - An open group with up-to-date information, news, photographs and much more. Facebook - Timeline

Discussion Groups - Individual Vasculitis Diseases

"Facebook" also has a number of Discussion Groups for the individual vasculitides. Go to "Facebook" and search for the disease.

Live Chat Room for CSS (EPGA)

To join please visit: Churgy Chums

Budget Travel Resources

Expertvagabond.com

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News

Emotions, Relationships and Sexuality

18 Jul 2018

100-page booklet available online or in print

Vasculitis UK Charity Ball

01 Jul 2018

A date for your diary

Rare Autoimmune Rheumatic Diseases Alliance

12 Apr 2018

RAIRDA Autoimmune Rheumatic Disease Alliance

Events

Llyn Peninsular Trek

23 Jul 2018

White Collar Boxing

28 Jul 2018

Tough Mudder Half Run Yorkshire

28 Jul 2018

Aimee Crossland is taking part in Tough Mudder for VUK

Total Warrior Shap Zone

04 Aug 2018

Karen is running this tough obstacle Race for VUK

West Country BBQ

19 Aug 2018

Copyright © 2018 Vasculitis UK. All Rights Reserved. Whilst we make every effort to keep up to date, any information that is provided by Vasculitis UK should not be a substitute for professional medical advice. Always seek the opinion of your GP or other qualified medical professional before starting any new treatment, or making changes to existing treatment.
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