Useful Vasculitis Links

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National and International Information

Disease specific websites

Vasculitis UK Web Discussion Groups

  • Vasculitis-UK HealthUnlocked - A discussion group for people with vasculitis and for people with an interest in vasculitis. You can set your own levels of privacy for who sees your posts. Health Unlocked
  • Facebook (Vasculitis UK): - Become a member of Facebook - Vasculitis UK. This is a closed group where only members can see your post.
  • Facebook (Vasculitis UK Young Vasculitis): - A closed group for young vasculitis patients between the ages of 16 and 30ish to chat to others in a safe environment. Facebook - Young Vasculitis
  • Facebook (Vasculitis UK Bereavement Support): - A closed and safe group for bereaved family and friends to chat to others who have been bereaved because of vasculitis. Facebook - Bereavement Support
  • Facebook (Vasculitis UK Caring for Carers): - A closed and safe group for those who are caring for a vasculitis patient. Chat and find help and support from others who care for a patient. Facebook - Caring for Carers
  • Facebook (Vasculitis UK Music for relaxation and meditation): - For music to help with relaxation, meditation or just to sit and close your eyes and rest for a while join. FAcebook - Relaxing and Meditation Music
  • Facebook (Vasculitis UK Timeline): - An open group with up-to-date information, news, photographs and much more. Facebook - Timeline

Discussion Groups - Individual Vasculitis Diseases

"Facebook" also has a number of Discussion Groups for the individual vasculitides. Go to "Facebook" and search for the disease.

Live Chat Room for CSS (EPGA)

To join please visit: Churgy Chums

Budget Travel Resources

Expertvagabond.com

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News

Art Inflammation and the Illness Experience - Shanali Perera

09 Jan 2018

Shanali Perera gave a presentation at the the Spring Vasculitis Education Day in March 2017

Rare Disease Day 2018

08 Jan 2018

February 28th is Rare Disease Day 2018

Great Runs 2018 for VUK

29 Nov 2017

VUK has places on three Great Runs in 2018

Events

South Wales Support Group

03 Feb 2018

Sat 3rd Feb in Porthcawl

North West Support Group Meeting

17 Mar 2018

Joing the Northwest Support Group for a coffee

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