Useful Vasculitis Links

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National and International Information

Disease specific websites

Vasculitis UK Web Discussion Groups

  • Vasculitis-UK HealthUnlocked - A discussion group for people with vasculitis and for people with an interest in vasculitis. You can set your own levels of privacy for who sees your posts. Health Unlocked
  • Facebook (Vasculitis UK): - Become a member of Facebook - Vasculitis UK. This is a closed group where only members can see your post.
  • Facebook (Vasculitis UK Young Vasculitis): - A closed group for young vasculitis patients between the ages of 16 and 30ish to chat to others in a safe environment. Facebook - Young Vasculitis
  • Facebook (Vasculitis UK Bereavement Support): - A closed and safe group for bereaved family and friends to chat to others who have been bereaved because of vasculitis. Facebook - Bereavement Support
  • Facebook (Vasculitis UK Caring for Carers): - A closed and safe group for those who are caring for a vasculitis patient. Chat and find help and support from others who care for a patient. Facebook - Caring for Carers
  • Facebook (Vasculitis UK Music for relaxation and meditation): - For music to help with relaxation, meditation or just to sit and close your eyes and rest for a while join. FAcebook - Relaxing and Meditation Music
  • Facebook (Vasculitis UK Timeline): - An open group with up-to-date information, news, photographs and much more. Facebook - Timeline

Discussion Groups - Individual Vasculitis Diseases

"Facebook" also has a number of Discussion Groups for the individual vasculitides. Go to "Facebook" and search for the disease.

Live Chat Room for CSS (EPGA)

To join please visit: Churgy Chums

Budget Travel Resources

Expertvagabond.com

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News

Vasculitis UK Poster Award

23 Oct 2017

A Vasculitis UK Poster has been nominated as best overall design at the Cambridge Rare Disease Summi

New Vasculitis UK 2017 Christmas Card

05 Oct 2017

New card for 2017

Rare Autoimmune Rheumatic Diseases Alliance

27 Sep 2017

New group formed

Events

Beds, Bucks and Herts: lunch

02 Dec 2017

Saturday lunch in Cambridgeshire

Chrismas Bazaar in Plymouth

02 Dec 2017

VUK seasonal fundraiser

Christmas Tree Festival in the Peak District

08 Dec 2017

VUK tree part of festival in Bakewell

East Midlands Vasculitis Support Christmas lunch/party

09 Dec 2017

Book now for festive meal

Merseyside , Cheshire and North Wales Support Meeting

12 Dec 2017

Meeting and Buffet in Liverpool

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