On 5th June 2026, the UK Medicines and Healthcare products Regulatory Agency (MHRA) announced that they are starting a review of the ‘benefits and risks of avacopan’. (Statement here). Whilst …
Introducing “See Me Hear Me”:
A website to support people affected by ANCA-Associated Vasculitis We are delighted to announce the launch of See Me Hear Me, a dedicated UK websitedesigned to support people living with …
Tavneos (avacopan) – update
Vasculitis International have issued an important update about investigation into Tavneos (avacopan) by the USA regulator the FDA. Patients on this drug should read the update to understand the situation …
Patient Day and AGM 2026
Vasculitis UK will be holding a Patient Day, along with our 2026 AGM on Wednesday 23rd September in Cambridge, UK. More details to follow.
EMA Review of Tavneos® (avacopan)
The European Medicines Agency (EMA) has started a review of Tavneos® (avacopan), a medicine used to treat ANCA-associated vasculitis, including GPA and MPA. This review is not due to new safety concerns or side …
John Mills MBE Vasculitis Education Award 2025
The UKIVAS (United Kingdom & All Ireland Vasculitis Society) annual Vasculitis Education event was held in November 2025. It’s a two-day event open to those medical professionals with a special …
Vasculitis UK AGM – Sunday 30 November
We ask you to support VUK and join our AGM online. It is important to register so that we can send you the link to join the meeting, the agenda …
Updated csDMARDs guideline 2025 expands to all ages
The British Society for Rheumatology has published an updated evidence-based clinical guideline on the safe use of conventional synthetic disease-modifying anti-rheumatic drugs (csDMARDs) across the full spectrum of autoimmune rheumatic …
Autumn Newsletter out now
The Autumn 2025 Newsletter is now available online. Those registered to receive it by post should receive their copy within the next few days.
The devastating impact of rare kidney diseases
A new report from Kidney Research UK has exposed the shocking reality faced by people living with rare kidney diseases in the UK. The independent study, Collectively common: the devastating …
