Could you help us develop guidelines for the management of IgA vasculitis (HSP) in children?
The EATC4C are developing UK guidelines on the management of children with Immunoglobulin A vasculitis (also known as Henoch Schonlein Purpura). We are looking for two parent/patient representatives to join the UK Immunoglobulin A vasculitis guidelines development group (UK IgAV GDG).
The role will involve attending a virtual (Zoom) meeting for 1 hour once a month for 12-18 months, and your task will be to represent patients to ensure the guideline meets the needs of the patients. The representative will receive a gift voucher in respect for their time and contributions.
To express an interest in taking on this exciting role please email [email protected] before Monday 12th July 2021.