National and International Information

Disease-Specific Websites

Vasculitis UK Web Discussion Groups

  • Vasculitis-UK HealthUnlocked – A discussion group for people with vasculitis and for people with an interest in vasculitis. You can set your own levels of privacy for who sees your posts. Health Unlocked
  • Facebook (Vasculitis UK): – Become a member of Facebook – Vasculitis UK. This is a closed group where only members can see your post.
  • Facebook (Vasculitis UK Young Vasculitis): – A closed group for young vasculitis patients between the ages of 16 and 30ish to chat to others in a safe environment. Facebook – Young Vasculitis
  • Facebook (Vasculitis UK Bereavement Support): – A closed and safe group for bereaved family and friends to chat to others who have been bereaved because of vasculitis. Facebook – Bereavement Support
  • Facebook (Vasculitis UK Caring for Carers): – A closed and safe group for those who are caring for a vasculitis patient. Chat and find help and support from others who care for a patient. Facebook – Caring for Carers
  • Facebook (Vasculitis UK Music for relaxation and meditation): – For music to help with relaxation, meditation or just to sit and close your eyes and rest for a while join. FAcebook – Relaxing and Meditation Music
  • Facebook (Vasculitis UK Timeline): – An open group with up-to-date information, news, photographs and much more. Facebook – Timeline

Discussion Groups – Individual Vasculitis Diseases

Facebook also has a number of Discussion Groups for the individual vasculitides. Go to Facebook and search for the disease.

Live Chat Room for CSS (EPGA)

To join please visit: Churgy Chums

Budget Travel Resources