About Vasculitis UK

Online DiscussionThere are a number of Social Media groups and resources which are used and enjoyed by people with vasculitis and by their families, including some that are run by Vasculitis UK

Vasculitis UK's own Social Media resources

  • Vasculitis UK has its own community on the HealthUnlocked platform, which provides a closed group where members can set their own levels of security regarding who can and can't view their posts. This is not a Facebook group: you can apply to join at: Vasculitis UK HealthUnlocked
  • There are various online vasculitis Facebook discussion groups both from the UK and from the USA. If you are a member of Facebook and would like to talk to others via Facebook, this link will take you to the Vasculitis UK support group. This group has been recommended by many in the UK who have been diagnosed with vasculitis for peer to peer support.
  • Vasculitis UK has produced a new booklet, Switching On The Light, which describes the value to those suffering a rare disease of joining a social support network. Currently available only as a download, we are currently seeking a commercial sponsor to help finance an initial print run

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News

Vasculitis Research Funding 2019

29 Aug 2019

Vasculitis Renal and Respiratory Training Day - Hammersmith Hospital

30 Jul 2019

RUDY Study

29 Oct 2015

A study in rare diseases of the bones, joints and blood vessels.

Copyright © 2018 Vasculitis UK. All Rights Reserved. Whilst we make every effort to keep up to date, any information that is provided by Vasculitis UK should not be a substitute for professional medical advice. Always seek the opinion of your GP or other qualified medical professional before starting any new treatment, or making changes to existing treatment.
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