Vasculitis in general is a rare disease and some types are extremely rare. People with vasculitis often feel very alone and isolated because few people properly understand their problems and they know nobody else with vasculitis.
Local groups provide an opportunity for people to meet and share knowledge and experiences.
Below you will find the link to the page giving the area and contact details for support groups through England and Wales.
You can also find out how you can start a group in your area.
See the Support Groups Gallery for photos of the local Support Groups in action
You can find details of forthcoming Vasculitis Support Group meetings at: Meetings
Some groups are large, holding formal meetings with invited speakers, others are very small, perhaps meeting for coffee in someone’s house, or at a cafe or pub. The most important part of any meeting is the sharing of experience.
We are also have details of Vasculitis Support Groups in other European countries (not many so far, but we will add more as time goes on)