Living With Vasculitis

Vasculitis in the Media

Read the articles published about vasculitis patients, and fundraisers for Vasculitis UK, who have had their stories told in the national, regional and local media.


Launch of a new Charity Single

Item covering the launch of a new Charity Single by local song writing duo, Clarry Bean and Andy Merryweather, ‘Christmas (The Way it’s Meant To Be)’. Clarry Bean sadly lost his wife, Christine, just 12 days before Christmas in 2017. She had received treatment for several years for both a rare autoimmune disease, Granulomatosis with Polyangiitis Vasculitis and bowel cancer.

Tribute to GPA sufferer

Vasculitis support group to start at Norfolk & Norwich

Eastern Daily Press news item announcing start of new group

How I got my nose back

Sun article about Jayne Hardman's experience with vasculitis, which has resulted in her being fitted with a prosthetic nose

Cleator Moor great-grandfather's charity wing walk

Coverage of Tom Connors, 78, who is will be strapped onto a 1940s biplane while it carries out a loop-the-loop, in aid of Vasculitis UK

Awareness campaign in Sunderland

The death of a mum-of-three from a condition where the immune system attacks the body has led her sister to launch a campaign to save others.

Craft Fair for Vasculitis UK

DAD and daughter duo Malcolm and Clare Bruce are hosting a Craft Fair in aid of Vasculitis UK

Cardiff Half Marathon - in a wedding dress

Janine Osborne-Bowring is set to run the Cardiff Half Marathon in her wedding dress – two weeks after going through chemotherapy

Eight peaks in a wedding dress - for Vasculitis UK

Medical Degree for Vasculitis student

University of Dundee student Elizabeth Ferris (30), who collected her medical degree on Friday, 23rd June. Elizabeth was diagnosed with Vasculitis, an autoimmune disorder that causes inflammation of the blood vessels. Coupled with blindness in one eye, the inflammation then struck her spine. As a result of this life changing illness she had to take three years out from her studies.

Neil Dougherty interview on BBC Radio in the West Midlands

Short video for Vasculitis Awareness Month

"Living with a Rare Disease is like having a full time job"

Suzanne's story of living with Behcet's disease, an extremely rare type of Vasculitis

Neil Dougherty talks about his diagnosis of Vasculitis to Neil Coffer

What is giant cell arteritis and how can I recognise it?

Photo of doctor and patients

A FATHER of two is taking on the highest peak in Wales just twelve months after being induced into a coma.

Megan Smith is helping others after being diagnosed with Vasculitis

Schoolgirl Xena Mclane's cold turned out to be life-threatening auto-immune condition that left her with end-stage kidney failure

Classroom Sleepout raises £400 for Vasculitis UK: 11 year-old Emily Duke organised a sleepover for her classmates

Megan Davis, a Vasculitis sufferer from Glasgow, is profiled in a Daily Record article that decribes her activities as a Cheerleader

Antony and Sally Hart are looking to raise awareness of Vasculitis, which affects their son Giles, in Hastings.

Martin Makin, who has vasculitis, has been getting great coverage on BBC in the East Midlands for his marathon run:

Dog toys help chronically-ill woman cope with conditions

ATHLETE DEFYING THE ODDS TO RAISE AWARENESS OF RARE ILLNESS

Martin Matkin

INSPIRATIONAL FUNDRAISER FOR VASCULITIS UK

Andrew Robertson

Andrew Robertson has been fundraising for Arthritis UK Research, and now is fundraising for Vasculitis UK.

JIM McCLUSKEY MEMORIAL DINNER

Jim McLuskey Memorial Dinner handbill

The dinner, held in February 2014, raised £4700 for Vasculitis UK. Jim, aged 62, was a senior referee in Scotland and lost his battle with Vasculitis, two years after being diagnosed.

"THE DOCTORS THOUGHT IT WAS ARTHRITIS"

Susan French remembering her brother Paul French

Susan French’s brother Paul French, died aged 69 in September 2014 after initially being treated for arthritis in the muscles.

'What is Vasculitis?'

Blood Cells

Rachel Dring

Rachel Dring

KAYLA FOULKES

Layla diagnosed with Kawasaki Disease

PETER MICALLEF

Peter Micallef - Ice with a Twist

ANDREW IRVING

Andrew Irving - Vasculitis patient

GARETH GARNER

Gareth Garner - Goodpasture's patient

HANNAH TWINBERROW

Hannah Twinberrow - Behcet's patient

CHARLIE PONDER - 80 MILE NORFOLK COAST RUN

Charlie Ponder GPA patient

EMILY SPENCER - YOUNG CNS PATIENT RECOGNISED FOR BRAVERY

Emily Spencer CNS patient

STEVE PASK RAISES FUNDS FOR VASCULITIS UK

Steve Pask

Steve took part in the Orwell Walk in June 2014, and a report of his fundraising was included in the East Anglia Daily Times on 2nd July. Steve Pask - East Anglia Daily Times

DAVE HAMPTON COMPLETES THE HENLEY UPSTREAM SWIM

Dave Hampton

JOE ENTERS THE L'EROICA BRITANNIA

L'Eroica Britannia

THE VALLEY GIRLS

The Valley Girls

NATALIE MOULSDALE AND FRIENDS

Natalie Moulsdale and Friends

MARTIN MAKIN

Martin Makin

HAROLD RAMIS

Harold Ramis

Ghosbusters UK are fundraising for Vasculitis UK during 2014 in memory of Harold Ramis. Further details can be found on the UK Ghostbuster's website.

BETHAN SPEAK

Bethan Speak

MARTIN MAKIN

Martin Makin

CLARRY BEAN, CHRISTINE BEAN AND ABBY MANSI

Abby and Clarry are singing duo Generation Gap. Christine has vasculitis. Here they are being interviewed by BBC Radio Wiltshire prior to their vasculitis concert in February 2014. (Recording by kind permission of the Graham Rodgers - Saturday Breakfast Show - Radio Wiltshire)

HOLLY HAMPSHIRE

Holly Hampshire

JOHN MILLS - Vasculitis on the BBC

John Mills

On 16th January 2013, John Mills, Chairman of Vasculitis UK was interviewed by BBC television. Watch the video - Vasculitis: Tackling the disorders that destroy the blood cells.

GILES HART

The Harts

LYNNE JACQUES

Lynne JULIE SCOTT

Julie MARTYN WELLS

Martyn SARAH THOMAS

Sarah

CHARITY IS A WINNER OF FOOTBALL MATCH

Charity Football

Two teams of parents battled it out on the football field to raise money for Vasculitis UK, in memory of Clare Grossman who died due to complications of vasculitis.

HEALTH MINISTER LAUNCHES VASCULITIS IRELAND AWARENESS CHARITY

Vasculitis Ireland Launch

Northern Ireland Health Minister, Edwin Poots, launches the Vasculitis Ireland Awareness charity on 29th May 2013. Also shown in the photograph are Julie Powers (leader of the charity) and Professor Mark Little.

BROMSGROVE DAD AND DAUGHTER TREK TO RAISE VASCULITIS AWARENESS

Bromsgrove Standard

Chris Jewson and his daughter Sarah Pittaway preparing for the Worcester Way Walk on 29th June 2013.

DAVID STARLING ENCOURAGES MORE PEOPLE TO BECOME ORGAN DONORS

David and Ryan

GILES HART AND THE FESTIVE JUMPERS

Giles and the Festive Jumpers

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