Living With Vasculitis
- Common Experiences with Vasculitis
- Health, Medical and Caring Information
- Vasculitis in Children
- NHS Patient Choices
- Personal Stories
- Government Benefits
- Health Services and other Organisational Support
- Studying with Vasculitis
- Workplace issues
- Vasculitis in the Media
- Podcasts and Videos
Vasculitis in the Media
Read the articles published about vasculitis patients, and fundraisers for Vasculitis UK, who have had their stories told in the national, regional and local media.
Final message from Robbie Cross
Robbie Cross was diagnosed with vasculitis with kidney involvement and had to have dialysis three times a week. He very sadly died at the end of May.
I could barely walk and nearly lost my sight – then a drug trial saved my life
Bath Spa Dentistry employees get their teeth into fundraising for Vasculitis U.K.
Launch of a new Charity Single
Item covering the launch of a new Charity Single by local song writing duo, Clarry Bean and Andy Merryweather, ‘Christmas (The Way it’s Meant To Be)’. Clarry Bean sadly lost his wife, Christine, just 12 days before Christmas in 2017. She had received treatment for several years for both a rare autoimmune disease, Granulomatosis with Polyangiitis Vasculitis and bowel cancer.
Tribute to GPA sufferer
Vasculitis support group to start at Norfolk & Norwich
Eastern Daily Press news item announcing start of new group
How I got my nose back
Sun article about Jayne Hardman's experience with vasculitis, which has resulted in her being fitted with a prosthetic nose
Cleator Moor great-grandfather's charity wing walk
Coverage of Tom Connors, 78, who is will be strapped onto a 1940s biplane while it carries out a loop-the-loop, in aid of Vasculitis UK
Awareness campaign in Sunderland
The death of a mum-of-three from a condition where the immune system attacks the body has led her sister to launch a campaign to save others.
Craft Fair for Vasculitis UK
DAD and daughter duo Malcolm and Clare Bruce are hosting a Craft Fair in aid of Vasculitis UK
Cardiff Half Marathon - in a wedding dress
Janine Osborne-Bowring is set to run the Cardiff Half Marathon in her wedding dress – two weeks after going through chemotherapy
Eight peaks in a wedding dress - for Vasculitis UK
Medical Degree for Vasculitis student
University of Dundee student Elizabeth Ferris (30), who collected her medical degree on Friday, 23rd June. Elizabeth was diagnosed with Vasculitis, an autoimmune disorder that causes inflammation of the blood vessels. Coupled with blindness in one eye, the inflammation then struck her spine. As a result of this life changing illness she had to take three years out from her studies.
Neil Dougherty interview on BBC Radio in the West Midlands
Vasculitis sufferer Neil Dougherty was interviewed by Graham Torrington about his illness and his fundraising work for Vasculitis UK
[No audio? Here is an Alternative link to download the audio file]
Short video for Vasculitis Awareness Month
"Living with a Rare Disease is like having a full time job"
Suzanne's story of living with Behcet's disease, an extremely rare type of Vasculitis
Neil Dougherty talks about his diagnosis of Vasculitis to Neil Coffer
What is giant cell arteritis and how can I recognise it?
A FATHER of two is taking on the highest peak in Wales just twelve months after being induced into a coma.
Megan Smith is helping others after being diagnosed with Vasculitis
Schoolgirl Xena Mclane's cold turned out to be life-threatening auto-immune condition that left her with end-stage kidney failure
Classroom Sleepout raises £400 for Vasculitis UK: 11 year-old Emily Duke organised a sleepover for her classmates
Megan Davis, a Vasculitis sufferer from Glasgow, is profiled in a Daily Record article that decribes her activities as a Cheerleader
Antony and Sally Hart are looking to raise awareness of Vasculitis, which affects their son Giles, in Hastings.
Martin Makin, who has vasculitis, has been getting great coverage on BBC in the East Midlands for his marathon run:
Dog toys help chronically-ill woman cope with conditions
ATHLETE DEFYING THE ODDS TO RAISE AWARENESS OF RARE ILLNESS
INSPIRATIONAL FUNDRAISER FOR VASCULITIS UK
Andrew Robertson has been fundraising for Arthritis UK Research, and now is fundraising for Vasculitis UK.
JIM McCLUSKEY MEMORIAL DINNER
The dinner, held in February 2014, raised £4700 for Vasculitis UK. Jim, aged 62, was a senior referee in Scotland and lost his battle with Vasculitis, two years after being diagnosed.
"THE DOCTORS THOUGHT IT WAS ARTHRITIS"
Susan French’s brother Paul French, died aged 69 in September 2014 after initially being treated for arthritis in the muscles.
'What is Vasculitis?'
CHARLIE PONDER - 80 MILE NORFOLK COAST RUN
EMILY SPENCER - YOUNG CNS PATIENT RECOGNISED FOR BRAVERY
STEVE PASK RAISES FUNDS FOR VASCULITIS UK
Steve took part in the Orwell Walk in June 2014, and a report of his fundraising was included in the East Anglia Daily Times on 2nd July. Steve Pask - East Anglia Daily Times
DAVE HAMPTON COMPLETES THE HENLEY UPSTREAM SWIM
JOE ENTERS THE L'EROICA BRITANNIA
THE VALLEY GIRLS
NATALIE MOULSDALE AND FRIENDS
Ghosbusters UK are fundraising for Vasculitis UK during 2014 in memory of Harold Ramis. Further details can be found on the UK Ghostbuster's website.
CLARRY BEAN, CHRISTINE BEAN AND ABBY MANSI
Abby and Clarry are singing duo Generation Gap. Christine has vasculitis. Here they are being interviewed by BBC Radio Wiltshire prior to their vasculitis concert in February 2014. (Recording by kind permission of the Graham Rodgers - Saturday Breakfast Show - Radio Wiltshire)
JOHN MILLS - Vasculitis on the BBC
On 16th January 2013, John Mills, Chairman of Vasculitis UK was interviewed by BBC television. Watch the video - Vasculitis: Tackling the disorders that destroy the blood cells.
LYNNE JACQUESJULIE SCOTT MARTYN WELLS SARAH THOMAS
CHARITY IS A WINNER OF FOOTBALL MATCH
Two teams of parents battled it out on the football field to raise money for Vasculitis UK, in memory of Clare Grossman who died due to complications of vasculitis.
- Kentish Express - 18 May 2013
HEALTH MINISTER LAUNCHES VASCULITIS IRELAND AWARENESS CHARITY
Northern Ireland Health Minister, Edwin Poots, launches the Vasculitis Ireland Awareness charity on 29th May 2013. Also shown in the photograph are Julie Powers (leader of the charity) and Professor Mark Little.
BROMSGROVE DAD AND DAUGHTER TREK TO RAISE VASCULITIS AWARENESS
Chris Jewson and his daughter Sarah Pittaway preparing for the Worcester Way Walk on 29th June 2013.
DAVID STARLING ENCOURAGES MORE PEOPLE TO BECOME ORGAN DONORS
GILES HART AND THE FESTIVE JUMPERS
- Giles Hart and his family held a Festive Jumper Day Enfield Independent - December 2013