Information last updated on 28th September 2023 We now have specific web pages with information and advice on Covid-19 and Vasculitis. Guidance for Vasculitis Patients Developed by Vasculitis UK Disclaimer: …
Spring Newsletter out now
The Spring 2025 Newsletter is now available online. Those registered to receive it by post should receive their copy within the next few days.
Visualising Vasculitis
During May 2025, Vasculitis UK will share what it is like to live with Vasculitis, and we encourage people to hold an event on the 15th or 31st May (or …
Report: Rare Care Matters
Almost one-third of UK rare rheumatic patients face a five-year wait for diagnosis Today, a new report reveals that some individuals with rare autoimmune rheumatic diseases (RAIRDs) in the UK …
Impacts of long-term steroid use
Dr. Jo Robson and colleagues at UWE Bristol conducted a study on the impact of appearance and weight changes caused by long-term steroid use, analyzing interviews with 60 patients with …
VUK Helpline needs helpers
Vasculitis UK runs a helpline that has helps point users to advice and resources that can make an enormous difference, especially to those newly diagnosed. The helpline is staffed by …
Four challenges in a year for Vasculitis UK
Max Wilshaw is fundraising for Vasculitis UK: he is attempting to raise £12k over a year to support and raise awareness for Vasculitis UK. The challenge started last year on …
AGM 2025
Vasculitis UK will be holding its 2025 AGM on Sunday 18 May. In contrast to recent years, this will be in-person event only: it will not be recorded. The event …
Volunteer Roles at VUK
Vasculitis UK is looking for volunteers to strengthen its team – you may be that person! We’re seeking enthusiastic volunteers to help in three areas. (Click the links to see …
Impact of reported misdiagnoses
‘I still can’t forget those words’: mixed methods study of the persisting impact on patients reporting psychosomatic and psychiatric misdiagnoses
Blood protein profiles provide new insights into large-vessel vasculitis
Large-vessel vasculitis (LVV) is the name for a group of diseases that cause inflammation and damage to arteries (the blood vessels that carry blood away from the heart). LVV affects …