Just a reminder that the Vasculitis U.K. Helpline is open from 9am – 8pm, 7 days a week. Telephone 0300 365 0075 You can contact the Vasculitis UK Helpline for …
Covid-19 vaccinations and vasculitis
Vasculitis UK has produced a brief guide on Covid-19 vaccination and issues for vasculitis patients. (Updated 4 February 2021). UPDATE: Tuesday 9 February 2021 People living in England who are …
Explaining vasculitis to children
Jen Harper, married to GPA patient Charlie, has written a book to help explain vasculitis to children – and is selling it in aid of Vasculitis UK. Holly Helps Out …
First UKIVAS Online Educational Vasculitis Webinar for Medical Professionals
Over 2 days in November, UKIVAS, the UK & Ireland Vasculitis Study Group, teamed up in partnership with the Royal Society of Medicine (RSM) to lay on an educational webinar for 500 medical delegates. …
RAIRDA report
The Rare Autoimmune Rheumatic Disease Alliance (of which Vasculitis UK is a member) has produced a new report “Core NHS services during the pandemic: Latest report from Parliament and what …
Jane’s story: “Coming Out of Shielding”
Jane Edwards has Granulomatosis with Polyangiitis (GPA). Her story “Coming Out of Shielding” has been published on the Rare Disease UK and Genetic Alliance UK website.
Patient Opinion Survey – Rheumatology Services during the COVID19 Pandemic
Do you see a Rheumatologist for your Vasculitis? Has your care been affected by COVID-19? What do you want your future appointments to be like? Please complete this survey & share your …
HSP Information Video
The FIRST Immunoglobulin A vasculitis (Henoch Schonlein Purpura) Online Patient Information Video The University of Liverpool are offering a video of this online event – offering an opportunity to learn …
Study: HSP with kidney involvement
The PINPOINT trial needs your help! They are looking for 5 patients/families to help them design a study comparing which medicines work best for children with HSP – in a …
Special Edition ANCA Vasculitis – See Me Hear Me
Rare Revolution magazine includes powerful individual stories highlighting the challenges of receiving a timely diagnosis and living with AAV, and describes the collaborative campaigns that are fusing science and art …