About Vasculitis UK

The Route Map for Vasculitis

Vasculitis UK Routemap Front Cover The Route Map is a 128 page document which is a guide to every aspect of vasculitis and living with vasculitis.

It was the result of an 18 month project sponsored by the Department of Health and facilitated by Genetic Alliance UK in 2011/12.

The clinical content was produced by Dr Matthew Morgan, Consultant Nephrologist and Professor Lorraine Harper, both of Birmingham University Hospital. The Route Map was edited by V-UK Trustee Pat Fearnside.

Other contributors to the Route Map are:

  • Dr David Jayne (Fertility and Vasculitis)
  • Dr Catherine Guly (Vasculitis and the Eye) - added May 2013
  • Dr Marcos Martinez Del Pero (Vasculitis and the Ear) - Added May 2013
  • Prof Justin Mason - update of Takayasu Arteritis - 2014
  • Dr Nicola Ambrose and Prof Dorian Haskard - update of Behçet's syndrome - 2014

Also added in May 2013 were two additional vasculitis diseases:

Sections on the following were updated in 2014:

Two new web pages on additional vasculitis diseases were added in March 2016:

When the routemap was first produced in 2013, we created it as a single PDF document (5.7Mb), and you can still download that version if you wish:

But we have decided that subsequent updates to the content are best handled by updating the pages on this website

The Individual Disease pages on the website are updated and monitored regularly and are all listed on this page of the website: http://www.vasculitis.org.uk/about-vasculitis/individual-diseases

Also available from Vasculitis UK on request


Guide To Vasculitis


Living With Vasculitis

Up to Date, Hard Copy booklets are now available on request :-

“A guide To Vasculitis“ – This booklet is intended as an introductory guide to vasculitis for people diagnosed with vasculitis and their families as well as medical and healthcare professionals and students who want to learn more about this group of rare auto-immune diseases

“Living With Vasculitis” – This booklet is intended for those who have been diagnosed with vasculitis and their family, friends and carers. It is also available for medical professionals and health care professionals who are supporting those diagnosed with vasculitis.

If you would like to order either booklet please contact John Mills john.mills@vasculitis.org.uk or Susan Mills susan@vasculitis.org.uk or telephone 0300 365 0075.

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News

An App to Support Vasculitis Patients and Research

21 Sep 2017

New app to help Vasculitis manage their condition

Emotions, Relationships and Sexuality

21 Sep 2017

100-page booklet available online or in print

Art Inflammation and the Illness Experience - Shanali Perera

09 Sep 2017

Shanali Perera gave a presentation at the the Spring Vasculitis Education Day in March 2017

Events

Gill's 40 Things At 40!

01 Oct 2017

40 Things in aid of VUK

Cardiff Half Marathon

01 Oct 2017

Running for Vasculitis UK

Vasculitis Support Group West Midlands

08 Oct 2017

The West Midlands Support Group are meeting on 8 October

Chester Marathon

08 Oct 2017

Michael Kingsbury is running for Vasculitis UK

Rare Disease Patient Network Meeting

18 Oct 2017

Free event in Cardiff

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