About Vasculitis UK
The Route Map for Vasculitis
The Route Map is a 128 page document which is a guide to every aspect of vasculitis and living with vasculitis.
It was the result of an 18 month project sponsored by the Department of Health and facilitated by Genetic Alliance UK in 2011/12.
The clinical content was produced by Dr Matthew Morgan, Consultant Nephrologist and Professor Lorraine Harper, both of Birmingham University Hospital. The Route Map was edited by V-UK Trustee Pat Fearnside.
Other contributors to the Route Map are:
- Dr David Jayne (Fertility and Vasculitis)
- Dr Catherine Guly (Vasculitis and the Eye) - added May 2013
- Dr Marcos Martinez Del Pero (Vasculitis and the Ear) - Added May 2013
- Prof Justin Mason - update of Takayasu Arteritis - 2014
- Dr Nicola Ambrose and Prof Dorian Haskard - update of Behçet's syndrome - 2014
Also added in May 2013 were two additional vasculitis diseases:
Sections on the following were updated in 2014:
Two new web pages on additional vasculitis diseases were added in March 2016:
When the routemap was first produced in 2013, we created it as a single PDF document (5.7Mb), and you can still download that version if you wish:
But we have decided that subsequent updates to the content are best handled by updating the pages on this website
The Individual Disease pages on the website are updated and monitored regularly and are all listed on this page of the website: http://www.vasculitis.org.uk/about-vasculitis/individual-diseases
Also available from Vasculitis UK on request
Guide To Vasculitis
Living With Vasculitis
Up to Date, Hard Copy booklets are now available on request :-
“A guide To Vasculitis“ – This booklet is intended as an introductory guide to vasculitis for people diagnosed with vasculitis and their families as well as medical and healthcare professionals and students who want to learn more about this group of rare auto-immune diseases
“Living With Vasculitis” – This booklet is intended for those who have been diagnosed with vasculitis and their family, friends and carers. It is also available for medical professionals and health care professionals who are supporting those diagnosed with vasculitis.