Information last updated on 28th September 2023 We now have specific web pages with information and advice on Covid-19 and Vasculitis. Guidance for Vasculitis Patients Developed by Vasculitis UK Disclaimer: …

NHS England are preparing for a Spring 2023 COVID 19 Booster programme, for the same groups that were eligible in Spring 2022: The current intention is that bookings will open around …

John Mill has been presented with his MBE in his home village in Derbyshire.  John was recognised in the New Year Honours 2023 with the award of an MBE “For …

John Mills, has been awarded an MBE in the New Year’s Honours List. His honour is “Awarded for services to People with Rare Diseases through his role as Chair and …

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) has released a report today highlighting ‘alarming disparities in the quality of care and treatment’ received by people living with rare autoimmune rheumatic diseases …

Over 120 clinicians representing 17 different clinical specialities, across all 4 nations, have released a clinical consensus statement – saying that there is sufficient evidence that the Covid-19 preventative Evusheld would …

Join us in calling on the UK Government to continue free tests for people who are eligible for COVID-19 treatments, their families and close contacts. The UK Government is ending …

The MedicineMatters website (a resource for healthcare professionals) is offering a 13-minute video of a discussion between Prof David Jayne of Cambridge University and Prof Sebastian E. Sattui of theUniversity …

UPDATE 6 Feb 2022: We have good news – the invitations to the MELODY study (Mass evaluation of lateral flow immunoassays (at home finger prick antibody tests) for the detection of …

Are you being treated with steroids for your rheumatic condition? We need your help to test a new questionnaire about steroid impact on quality of life for people living in …