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Rare Disease Day 2023

In News by John Geddes

This Rare Disease Day – Tuesday February 28th 2023 – RAIRDA is calling on you to help us #ResetTheBalanceForRAIRDs. Use our template to email your parliamentary representative, asking them to …

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John Mills presented with his MBE

In News by John Geddes

John Mill has been presented with his MBE in his home village in Derbyshire.  John was recognised in the New Year Honours 2023 with the award of an MBE “For …

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BIOVAS trial seeking participants

In News by John Geddes

Vasculitis UK is helping the BIOVAS clinical trial to identify suitable participants. The two-year trial is looking at the effectiveness of infliximab (INF), tocilizumab (TCZ) and rituximab (RTX). Suitable patients …

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John Mills MBE

In News by John Geddes

John Mills, has been awarded an MBE in the New Year’s Honours List. His honour is “Awarded for services to People with Rare Diseases through his role as Chair and …

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London concert for VUK

In Fundraising, News by John Geddes

Chris Knaggs was treated for vasculitis at the Royal Free hospital. His family were keen to raise money for the Vasculitis UK and for the Royal Free – and the …

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Report shows “alarming disparities”

In News by John Geddes

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) has released a report today highlighting ‘alarming disparities in the quality of care and treatment’ received by people living with rare autoimmune rheumatic diseases …

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Evusheld update

In News by John Geddes

Over 120 clinicians representing 17 different clinical specialities, across all 4 nations, have released a clinical consensus statement – saying that there is sufficient evidence that the Covid-19 preventative Evusheld would …

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Call for Research Proposals

In News by John Geddes

Vasculitis UK is pleased to announce its 2022 call for research proposals. The call launches on 31st August with a deadline for applications of 7th October 2022. Decisions will be …

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WORD Day Webinar

In News by John Geddes

WORD: World yOung Rheumatic Diseases Day, Friday 18 March In line with their initiative to spread the word about early diagnosis and referrals to paediatric rheumatology experts, the WORD committee …