Takayasu Arteritis patients, and physicians treating them, are invited to take part in the TAK-IMPACT study (Investigating the Management, Perspectives, and Attitudes towards Care in Takayasu Arteritis). This is an anonymous questionnaire-based …
“My world has shrunk”
“My world has shrunk” is the title of a mixed-methods exploration of the impact of systemic autoimmune rheumatic diseases on patients’ lives, which is the subject of an article in …
NICE Approves Benralizumab for EGPA Treatment
The National Institute for Health and Care Excellence (NICE) has issued its final draft guidance recommending benralizumab as a treatment option for people with eosinophilic granulomatosis with polyangiitis (EGPA). This …
The John Mills MBE Education Award – UKIVas
Background Dr John Mills was a Bakewell dentist who was diagnosed with Granulomatosis with Polyangiitis in 2001. Following his diagnosis, he undertook many roles including becoming a member of the …
New Guidelines for ANCA Associated Vasculitis
A group of experts from the British Society for Rheumatology came together to improve care for people ANCA-associated vasculitis. These experts included doctors who specialize in joints, kidneys, lungs, ear, …
AGM presentations
The main slide deck from the 2025 AGM is now available (as a PDF file). The AGM included a presentation by Alice Muir, on the RECORDER project. The resultant set …
Visualising Vasculitis
During May 2025, Vasculitis UK will share what it is like to live with Vasculitis, and we encourage people to hold an event on the 15th or 31st May (or …
Report: Rare Care Matters
Almost one-third of UK rare rheumatic patients face a five-year wait for diagnosis Today, a new report reveals that some individuals with rare autoimmune rheumatic diseases (RAIRDs) in the UK …
Impacts of long-term steroid use
Dr. Jo Robson and colleagues at UWE Bristol conducted a study on the impact of appearance and weight changes caused by long-term steroid use, analyzing interviews with 60 patients with …