Information last updated on 28th September 2023 We now have specific web pages with information and advice on Covid-19 and Vasculitis. Guidance for Vasculitis Patients Developed by Vasculitis UK Disclaimer: …
Covid Booster
NHS England are preparing for a Spring 2023 COVID 19 Booster programme, for the same groups that were eligible in Spring 2022: The current intention is that bookings will open around …
Rare Disease Day 2023
This Rare Disease Day – Tuesday February 28th 2023 – RAIRDA is calling on you to help us #ResetTheBalanceForRAIRDs. Use our template to email your parliamentary representative, asking them to …
John Mills presented with his MBE
John Mill has been presented with his MBE in his home village in Derbyshire. John was recognised in the New Year Honours 2023 with the award of an MBE “For …
BIOVAS trial seeking participants
Vasculitis UK is helping the BIOVAS clinical trial to identify suitable participants. The two-year trial is looking at the effectiveness of infliximab (INF), tocilizumab (TCZ) and rituximab (RTX). Suitable patients …
John Mills MBE
John Mills, has been awarded an MBE in the New Year’s Honours List. His honour is “Awarded for services to People with Rare Diseases through his role as Chair and …
Great North and South Runs 2023
We have places for the Great North Run 2023, and the Great South Run 2023. Please email [email protected] to reserve a place. We ask that you raise a minimum of …
London concert for VUK
Chris Knaggs was treated for vasculitis at the Royal Free hospital. His family were keen to raise money for the Vasculitis UK and for the Royal Free – and the …
Report shows “alarming disparities”
The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) has released a report today highlighting ‘alarming disparities in the quality of care and treatment’ received by people living with rare autoimmune rheumatic diseases …
Evusheld update
Over 120 clinicians representing 17 different clinical specialities, across all 4 nations, have released a clinical consensus statement – saying that there is sufficient evidence that the Covid-19 preventative Evusheld would …