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Webinar with Prof Chris Whitty

In News by John Geddes

RSM Covid Webinar – Interview with Prof Chris Whitty During Lockdown, the Royal Society of Medicine has been holding a series of regular online webinars for members and guests, under …

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RareDisease Survey for 13-25’s

In News by John Geddes

The Royal College of Paediatrics and Child Health (RCPCH) works with children and young people/adults aged 13-25 all over the UK to improve health services. Rare Disease Day aims to …

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VUK Funds COVID19 Research Study

In News by John Geddes

“Do people with vasculitis mount an effective response to the Covid-19 vaccination and how long does it last?” Vasculitis and its treatment affect the immune system. People with vasculitis may not …

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Goodbye EHIC, Hello GHIC

In News by John Geddes

Good news on the insurance front: the EHIC card has been replaced by the GHIC card, and like its predecessor, it is free. (If a GHIC-application website requires a payment, …

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Vasculitis UK Helpline

In News by John Geddes

Just a reminder that the Vasculitis U.K. Helpline is open from 9am – 8pm, 7 days a week. Telephone 0300 365 0075 You can contact the Vasculitis UK Helpline for …

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Rare Disease Day 2021

In News by John Geddes

Rare Disease Day 2021 is on the 28th February.  Claudia was diagnosed with ANCA Vasculitis early in 2019 after being wrongly diagnosed with Sarcoidosis in 2018. Claudia submitted her personal Vasculitis …

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Covid-19 vaccinations and vasculitis

In News by John Geddes

Vasculitis UK has produced a brief guide on Covid-19 vaccination and issues for vasculitis patients. (Updated 4 February 2021). UPDATE: Tuesday 9 February 2021 People living in England who are …

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Explaining vasculitis to children

In News by John Geddes

Jen Harper, married to GPA patient Charlie, has written a book to help explain vasculitis to children – and is selling it in aid of Vasculitis UK. Holly Helps Out …

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Research Survey: Neuropathy in Vasculitis

In News by John Geddes

Neuropathy is nerve damage.  Vasculitis is inflammation of the lining of blood vessels which results in reduced blood supply & damage to the tissues supplied by those vessels.  Every part of the …