Over 2 days in November, UKIVAS, the UK & Ireland Vasculitis Study Group, teamed up in partnership with the Royal Society of Medicine (RSM) to lay on an educational webinar for 500 medical delegates. …
RAIRDA report
The Rare Autoimmune Rheumatic Disease Alliance (of which Vasculitis UK is a member) has produced a new report “Core NHS services during the pandemic: Latest report from Parliament and what …
Jane’s story: “Coming Out of Shielding”
Jane Edwards has Granulomatosis with Polyangiitis (GPA). Her story “Coming Out of Shielding” has been published on the Rare Disease UK and Genetic Alliance UK website.
Patient Opinion Survey – Rheumatology Services during the COVID19 Pandemic
Do you see a Rheumatologist for your Vasculitis? Has your care been affected by COVID-19? What do you want your future appointments to be like? Please complete this survey & share your …
HSP Information Video
The FIRST Immunoglobulin A vasculitis (Henoch Schonlein Purpura) Online Patient Information Video The University of Liverpool are offering a video of this online event – offering an opportunity to learn …
Study: HSP with kidney involvement
The PINPOINT trial needs your help! They are looking for 5 patients/families to help them design a study comparing which medicines work best for children with HSP – in a …
Special Edition ANCA Vasculitis – See Me Hear Me
Rare Revolution magazine includes powerful individual stories highlighting the challenges of receiving a timely diagnosis and living with AAV, and describes the collaborative campaigns that are fusing science and art …
VUK funds Covid-related research
Vasculitis UK has announced funding for two research programmes: £32,856 for a 6-month study into “The effect of COVID19 on people with Vasculitis” £7,500 as a contribution to a £95,000 …
RAIRDA survey results
The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) have just published a report based on a survey of 1,300 people with rare autoimmune rheumatic conditions. These people are facing a Chronic …
Try a 2.6 challenge for Vasculitis UK
With our programme of fundraising events disrupted by the Covid-19 crisis, Vasculitis (like many other charities) is seeing a big drop in fundraising income. The 2.6 Challenge helps raise funds …