Jane Edwards has Granulomatosis with Polyangiitis (GPA). Her story “Coming Out of Shielding” has been published on the Rare Disease UK and Genetic Alliance UK website.
Patient Opinion Survey – Rheumatology Services during the COVID19 Pandemic
Do you see a Rheumatologist for your Vasculitis? Has your care been affected by COVID-19? What do you want your future appointments to be like? Please complete this survey & share your …
HSP Information Video
The FIRST Immunoglobulin A vasculitis (Henoch Schonlein Purpura) Online Patient Information Video The University of Liverpool are offering a video of this online event – offering an opportunity to learn …
Study: HSP with kidney involvement
The PINPOINT trial needs your help! They are looking for 5 patients/families to help them design a study comparing which medicines work best for children with HSP – in a …
Special Edition ANCA Vasculitis – See Me Hear Me
Rare Revolution magazine includes powerful individual stories highlighting the challenges of receiving a timely diagnosis and living with AAV, and describes the collaborative campaigns that are fusing science and art …
VUK funds Covid-related research
Vasculitis UK has announced funding for two research programmes: £32,856 for a 6-month study into “The effect of COVID19 on people with Vasculitis” £7,500 as a contribution to a £95,000 …
RAIRDA survey results
The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) have just published a report based on a survey of 1,300 people with rare autoimmune rheumatic conditions. These people are facing a Chronic …
Try a 2.6 challenge for Vasculitis UK
With our programme of fundraising events disrupted by the Covid-19 crisis, Vasculitis (like many other charities) is seeing a big drop in fundraising income. The 2.6 Challenge helps raise funds …
Covid-19 Experience Survey
A message from The COVID-19 Global Rheumatology Alliance Team: As the COVID-19 (novel coronavirus) crisis worsens around the world, we are all looking for ways to help. Every one of …
CANCELLED: Vasculitis UK AGM
The Vasculitis UK AGM scheduled for Sunday May 17th 2020 has been cancelled. We are aiming to reschedule it for the autumn.